{"id":3362,"date":"2025-03-27T10:37:43","date_gmt":"2025-03-27T10:37:43","guid":{"rendered":"https:\/\/shareitproject.dk\/?p=3362"},"modified":"2025-03-28T05:22:52","modified_gmt":"2025-03-28T05:22:52","slug":"share-it-deltog-ved-rundbordssamtale-pa-christiansborg-i-anledning-af-sjaeldne-dagen-2025","status":"publish","type":"post","link":"https:\/\/shareitproject.dk\/en\/share-it-deltog-ved-rundbordssamtale-pa-christiansborg-i-anledning-af-sjaeldne-dagen-2025\/","title":{"rendered":"SHARE IT deltog ved Rundbordssamtale p\u00e5 Christiansborg i anledning af Sj\u00e6ldne Dagen 2025\u00a0"},"content":{"rendered":"

Vi var stolte over at blive inviteret til at deltage i debatten om det runde bord i anledning af Sj\u00e6ldne Dagen d. 28. februar 2025 afholdt p\u00e5 Christiansborg.<\/p>\n

Med fokus p\u00e5 Nordic Roadmap for Rare Diseases og indledt af Monica Rubin (Moderaterne) og Maria Gudme (Socialdemokratiet), som satte ord p\u00e5 sundhedstrukturreformen i et sj\u00e6ldne-perspektiv, fik vi mulighed for at fort\u00e6lle om vores arbejde i SHARE IT-projektet under overskriften “Hvad er l\u00f8sningerne?\u201d<\/p>\n

Vi pegede blandt andet p\u00e5, at der er perspektiver i brug af digitale tv\u00e6rsektorielle teams i et simpelt messenger-lignende v\u00e6rkt\u00f8j \u2013 og at det store behov for tovholdere blandt for\u00e6ldre til b\u00f8rn med sj\u00e6ldne diagnoser m\u00e5ske kan opn\u00e5s gennem brug af digitale tovholdere.<\/p>\n

Det skal blive sp\u00e6ndende at f\u00f8lge med i, hvordan en fremtidig sj\u00e6ldnepakke kan udforme sig. Vi bidrager i hvert fald gerne med den forskning og nye indsigter, vi f\u00e5r i SHARE IT-projektet.<\/p>\n

Tak til organisationen Sj\u00e6ldne Diagnoser<\/a> for invitationen og en sp\u00e6ndende dag.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Vi var stolte over at blive inviteret til at deltage i debatten om det runde bord i anledning af Sj\u00e6ldne Dagen d. 28. februar 2025 afholdt p\u00e5 Christiansborg. Med fokus p\u00e5 Nordic Roadmap for Rare […]<\/p>","protected":false},"author":1,"featured_media":3363,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[33],"tags":[],"class_list":["post-3362","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nyheder"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/posts\/3362","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/comments?post=3362"}],"version-history":[{"count":3,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/posts\/3362\/revisions"}],"predecessor-version":[{"id":3367,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/posts\/3362\/revisions\/3367"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/media\/3363"}],"wp:attachment":[{"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/media?parent=3362"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/categories?post=3362"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/shareitproject.dk\/en\/wp-json\/wp\/v2\/tags?post=3362"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}